Better You Know...

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About Better You Know.

Better you know is a campaign developed by the National Hemophilia Foundation (NHF) in partnership with the Centers for Disease Control and Prevention (CDC). The campaign  focused on women who may experience symptoms of a bleeding disorder but have not been diagnosed. The aim of the campaign is to raise awareness and knowledge of bleeding disorders and provide resources for women who seek care. The campaign has a risk assessment tool, postcards, brochures, booklets, and videos for women to learn whether they are at risk for a bleeding disorder and the next steps to take to seek care. Help spread awareness of bleeding disorders so women don't go undiagnosed. 




Bleeding disorders can easily go undiagnosed. If you suspect you might have a bleeding disorder, your life can be better if you seek care and get treatment. Find out if you are experiencing symptoms and if so, where you can seek care. It is better you know.

What is the definition of a bleeding disorder?
Bleeding disorders;, which can be deadly if not treated properly, is a term that covers conditions that
prevent the blood from clotting normally, causing those affected to experience prolonged bleeding after injury, surgery, or physical trauma. Von Willebrand disease (VWD) is the most common bleeding
disorder affecting women.

How common are bleeding disorders? Which bleeding disorder is most common?
Up to 1% of women may have a bleeding disorder, 1.6 million women in the United States, which is
more than the population of Philadelphia. Many of them are undiagnosed.Von Willebrand disease (VWD) is the most common inherited bleeding disorder. It develops when the blood lacks a protein called von Willebrand factor, which helps the blood to clot.

Are some people affected more than others?
Bleeding disorders can affect anyone but they tend to be inherited (or passed down from a parent to a
child). It may be helpful to talk to someone in your family to find out if any blood relatives have a
bleeding disorder or if your female relatives experience heavy menstrual bleeding.



What symptoms should people look out for?

Heavy menstrual bleeding (your period) may be the most noticeable symptom of a bleeding disorder, if
you have to change a pad or tampon every hour, or if your periods last longer than 7 days.

But you should talk to your healthcare provider if you’ve experienced any of these other symptoms too:

a. Heavy bleeding after childbirth or miscarriage, or after any surgery including dental surgery
b. Bleeding from cuts or injuries, or spontaneous nosebleeds, that last longer than 10 minutes
c. Bruising easily, with bruises that are raised and larger than a quarter
d. Having someone in your family who has one or more of these symptoms, or has been diagnosed with a bleeding disorder, such as von Willebrand disease (VWD) or hemophilia.




If you are someone who maybe experience some changes, I encourage you to find out more information information at www.betteryouknow.org. The website will have tools such as risk assessment., symptoms trackers and webinars to learn more about bleeding disorders. 

Finding out if you have a bleeding disorder and getting the medical help you need can really improve your daily quality of life and reduce stress. Besides being an inconvenience, heavy bleeding can be a health risk. Untreated bleeding disorders can cause dangerous bleeding during dental work, injury, childbirth, miscarriage, or any surgery whether minor or major.